CCGs in the West Midlands must provide for the citizens of the...
After a long day on Wednesday in the Parliament, I took the opportunity to raise issues which are facing patients at the Neuromuscular Centre in the West Midlands. Why are #CCGs not providing money to this important centre for sufferers of muscular dystrophy? Let me know if you've had issues with local CCGs - comment below.Posted by Siôn Simon on Friday, 13 November 2015
Neuromuscular Centre Midlands – What we do
NMC Midlands is a charity set up to offer support to people with muscular dystrophy and other muscle wasting diseases in the Midlands region. There are 70,000 people with muscle wasting disease over the UK and around 12,000 of these are in the Midlands region alone.
People with these conditions experience a significant reduction in the amount of physiotherapy they receive from the NHS after turning the age of 19. The correct physiotherapy is essential to people with muscle wasting diseases as it maintains mobility and reduces the rate of muscle deterioration. One of the main services NMC Midlands offers is free and continuous specialist physiotherapy for people with these conditions. In addition we have services available to offer support for other areas of life that become challenging to people with muscle wasting diseases. To find out more about the wide range of services we have on offer and on how to get in touch with us please click here.
Please click here to view our NMC Midlands Spring Newsletter with news and developments over the last few months at the Centre.
We welcome new staff and say a fond farewell to others. There are lots of great stories and details of upcoming events. Our services are continuing to develop and improve, and feedback from service-users of benefits they are experiencing are reflecting the quality of the services and care our team are providing.
As always, we are very keen to hear from you regarding suggestions for service improvements, fundraising ideas and volunteering. We also invite you to visit the Centre to see and hear first hand how our services are making a difference. If you have any stories, articles or information to include in the next newsletter, please get in touch. Also, we will soon send everyone copies of our service user and carer surveys – PLEASE take a few minutes to complete these documents because without your input we cannot continue improving and developing our services and help people with muscular dystrophy.
Happy reading and thank you for your continued support!
The NMC Midlands Team.
New ways to support NMC Midlands! – Single Donation and Standing Order Donation forms
New Extended Hours for Therapy at NMC Midlands
Click on the link below to view our new extended treatment hours:
“My visits to the centre started when I realised how much of a difference regular treatment made to my physicality and well being. I did manage to get one physiotherapy appointment and 6 hydrotherapy appointments through the NHS. This was approximately 3 years ago. By the time I came to the centre 2 years ago I had experienced a rapid reduction in my mobility, movement in my neck and shoulders, and my hands.
Like many of us with muscle-wasting conditions I don’t want to be a burden on my family, the NHS, my GP or anyone else. Attending the Centre once a month for treatment enables me to maintain a level of personal independence that 3 years ago I thought would not be possible. Most importantly, it enables me to continue to function effectively as both a mother and an employee as my motivation is significantly improved after visiting the centre and I am able to put some of the practical ideas that we discuss into my day to day activities.
Since attending the centre I am no longer experiencing the rapid deterioration that I had previously, and in some areas I have actually seen an improvement. The fact that I have suffered no falls in over a year, or had to take time off work through this condition speaks volumes.”
“Coming to the Centre has allowed me to have a normal life, and helped me have a positive outlook. The importance of this cannot be underestimated. The Centre is a real life-line- not only offering physiotherapy and osteopathy but also counselling and advocacy sessions. Often we feel written off by the medical profession because we have deteriorating muscle conditions but this Centre strives to provide you with the specialist support you need and deserve.
I had previously been going to a chiropractic clinic which was not only costing me but the treatment I was receiving was limited and never advisory. I longed for treatment from someone who was knowledgeable about my condition; someone who could give me some advice.
The treatment enables me to remain active and physically able to keep up my optimal ability. Without the osteopathy treatment I get at the centre I often experience a decreased level of physical and mental functioning limiting my life choices and also impacting on my mood. The staff at the centre are so friendly and good natured that it really does make me feel more positive and that is before I have even had any treatment.
The osteopathy I receive is what I find most beneficial and I can’t begin to explain how valuable it is to me. Osteopathy helps me to understand how my body is functioning and provides advice as to what might improve aspects that are limiting my range of movement. This is of paramount importance and so is the ‘stack breathing technique’ I have been taught. I am able to do this technique at home so really feel the benefits.”
“Being referred to the NMC Midlands and its brilliant specialist physiotherapists and osteopaths has been very important in living with my Duchenne Muscular Dystrophy. The centre and its specialists assess you and then the care becomes more person centred.
My issues were regarding my arms/fingers getting stiff and stopping my quality of life. The osteopath did some shoulder exercises and instantly my arms warmed up and became more flexible. My mother was shown these exercises and we do them everyday, it has improved my independence as I need less care.
Without the NMC Midlands my muscular dystrophy would have restricted my life but due to the fantastic centre my quality of life has improved and my muscle flexibility has been improved. It’s an important centre as you cannot access these specialist services easily in Leicester, I cannot stress how brilliant this centre is in providing necessary care. Everyone would benefit if they were referred to the NMC Midlands”
“The physios here are outstanding! So patient and so concerned! I have only had 2 sessions and already can see benefits. All staff are fantastically helpful and I value being able to spend time at the Centre!”
“I have got nothing but praise for all at the NMC. Not just the physios but all the staff in the office, and all the people who help free of charge. For the first time in my life I actually look forward to attending my sessions. Ellie and Lynn are fantastic as you can also have a laugh and a joke with them.”
“I have been helped by these wonderful people, it’s a vital place for anyone like me they are a fantastic professional and dedicated group who are always there for anyone who needs them. They deserve our help back in any way we can and especially if you can do some fundraising. ”
“I am very grateful to everyone at NMC, especially for the physio, acupuncture and soft tissue massage which have helped my balance and my confidence when going out. The pain in my muscles has reduced as a result of the treatment I have received. All staff at NMC always make me feel welcome and I am glad there is somewhere where I can go where my condition is understood.”