Neuromuscular Centre Midlands – What we do!

NMC Midlands is a charity set up to offer support to people with muscular dystrophy and other muscle wasting diseases in the Midlands region. 70,000 people suffer from muscle wasting disease over the UK and around 12,000 of these are in the Midlands region alone.

Sufferers of these diseases experience a significant reduction in the amount of physiotherapy they receive from the NHS after turning the age of 19. The correct physiotherapy is essential to people with muscle wasting diseases as it maintains mobility and reduces the rate of muscle deterioration. One of the main services NMC Midlands offers is free and continuous specialist physiotherapy for sufferers of these diseases. In addition we have services available to offer support for other areas of life that become challenging to people with muscle wasting diseases. To find out more about the wide range of services we have on offer and on how to get in touch with us please click here.


Sion Simon, MEP for Birmingham, visits NMC Midlands

On 28th March 2015, MEP for Birmingham Sion Simon, visited NMC Midlands to meet service users, staff and supporters and see first-hand our therapy in action and the difference it makes for service users and their families.

Sion was interested to hear about the development of the Centre, based upon the model of best practice pioneered by NMC Winsford in Cheshire, and the need to provide condition specific therapy for patients across the Midlands without the barrier of hours of travel.  He heard about the sterling efforts of the original Trustees and supporters who, with the help of the Musculr Dystrophy Campaign (MDC) and NMC Cheshire, fundraised and managed to develop the Centre, investing in specialist equipment and facilities allowing the Centre to provide therapy for patients across the range of neuromuscular conditions and the dystrophies.

Current service users spoke to Sion and told him about how the therapies provided at NMC Midlands had impacted upon their lives and the management of their condition.  Andy Collins, who has FSH Muscular Dystrophy, told Sion how the regular therapy provided meant that he now had significantly fewer falls, was able to maintain his mobility and independence, as well as retaining a positive outlook on the management of his condition.

Sion was also interested to hear about the way the Centre was funded, the amazing fundraisers and supporters, and the role the NHS and Clinical Commissioning Groups should play in funding such services.  Sion has promised to stay in touch with the Centre and support its engagement with the NHS to ensure that more patients with neuromuscular conditions can access such life changing services.

Sion Simon MEP hears from trustees Ruth Hereford and Jagdeep kaur Sehmbi about the Centre's development

Sion Simon MEP hears from trustees Ruth Hereford and Jagdeep kaur Sehmbi about the Centre’s development

 

 

 

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The Coventry Half Marathon 2015

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Here is a picture of some of our fantastic fundraising runners, after the Coventry Half Marathon on Sunday 1st March 2015.

This looks to have been one of our most successful events to date, bringing in nearly £3,000 from our fantastic runners and those who supported them.

Well done to all of the fundraisers that took part and thank you for your incredible efforts!


New Lead Physiotherapist Joins NMC Midlands

Click on the link below to read about our new Lead Physiotherapist:

http://nmc-midlands.co.uk/new-lead-physiotherapist-joins-nmc-midlands/


New Extended Hours for Therapy at NMC Midlands

Click on the link below to view our new extended treatment hours:

http://nmc-midlands.co.uk/extended-therapy-hours-at-nmc-midlands/


Obituary for Steve Miles an NMC service user

It with sad hearts that we heard of the recent death of Steve Miles. Click on the link below to read his obituary:

http://nmc-midlands.co.uk/news/obituary-for-steve-miles-an-nmc-midlands-service-user/